Getting caught up life sometimes makes you forget why you're actually here... That's how I feel after having my daughter. She's so much work, and so much fun, and such a beautiful distraction from worshiping God. I know taking care of her, and raising her is a type of worship, but I really lost touch from talking to God, I miss it and I'm not sure how to reconnect.
I recently read somewhere that if you want to know if what you have is a blessing or a test, ask yourself has it brought you closer to God, if so then it's a blessing. But if it has distanced you from God it is a test. At this moment under the dark shadow of my daughter being diagnosed with a rare genetic syndrome, I feel myself growing closer to God again.
Jude was born with an enlarged toe (Macrodactyly), we thought it was isolated, and just needed cosmetic surgery. Over the past year she has developed a fatty growth on her shin, and we also noticed her right leg is slightly larger than her left. We still don't know what it is, there are a few possibilities, all are overgrowth syndromes and there is no way of knowing how far it will progress. There is also an increased risk of developing Kidney tumors, which is why she will be screened every three months by ultrasound.
I have been doing so much research, and the images I have come across are haunting me and cannot be unseen. Then a little voice inside me says "everything is going to be ok" and I look at my Jude and see a perfect, healthy and happy little toddler that makes me forget any fear, we will be ok.
I recently read somewhere that if you want to know if what you have is a blessing or a test, ask yourself has it brought you closer to God, if so then it's a blessing. But if it has distanced you from God it is a test. At this moment under the dark shadow of my daughter being diagnosed with a rare genetic syndrome, I feel myself growing closer to God again.
Jude was born with an enlarged toe (Macrodactyly), we thought it was isolated, and just needed cosmetic surgery. Over the past year she has developed a fatty growth on her shin, and we also noticed her right leg is slightly larger than her left. We still don't know what it is, there are a few possibilities, all are overgrowth syndromes and there is no way of knowing how far it will progress. There is also an increased risk of developing Kidney tumors, which is why she will be screened every three months by ultrasound.
I have been doing so much research, and the images I have come across are haunting me and cannot be unseen. Then a little voice inside me says "everything is going to be ok" and I look at my Jude and see a perfect, healthy and happy little toddler that makes me forget any fear, we will be ok.
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